Rachy - Follow Rachy's battle with an undiagnosed interestitial lung disease on the road to transplant.
Ayesha - Keep upto date with Ayesha and her Wegner's Granulomatosis.
Faybree's Story - Faybree was born a healthy baby in January 2008, 6 weeks later she was diagnosed with a form of children's interstitial lung disease called ABCA3 Surfactant Protein Deficiency, she clung onto life and just 2 months later she received a double lung transplant. A video about Faybree can be viewed here.
Maddie & Hallie - ABCA3 Surfactant Protein Deficiency - Both Maddie and Hallie have been diagnosed with ABCA3 'abnormality.' Maddie developed children's interstitial lung disease and Hallie is currently asymptomatic. Maddie is on oxygen 24 hours a day and gets G-tube feedings.
James' Story - James passed away aged almost 3 due to lysinuric protein intolerance and Pulmonary Alveolar Proteinosis in this sad but touching blog his parents share his story and their journey.
The chILD in Matthew - Neuro-Endocrine Cell Hyperplasia Of Infancy - This blog is dedicated to all the parents and children dealing with Interstitial Lung Disease. Our hope is to promote awareness by telling Matthew's story and to possibly guide others in the right direction who may still be looking for answers.
Life with a rare lung child - Julia is a beautiful blonde, blue eyed 7yr old who suffers from a form of chILD called Neuro-Endocrine Cell Hyperplasia Of Infancy.
Tales from a NEHI momma - A touching yet funny blog about one families life and Neuro-Endocrine Cell Hyperplasia Of Infancy.
Madison NEHI - This blog was created to share Madison's story and to hopefully promote awareness about children's interstitial lung disease and Neuro-Endocrine Cell Hyperplasia Of Infancy.
Our Journey with chILD - One familie's search for a diagnosis, treatment, and the day-to-day activities in their ChILD lives.
Unique but not alone - A mum's personal account of life with her two daughters aged 4 and 6 who suffer from Alpha-1 Antitrypsin Deficiency.
Daily Ponderings - The ramblings of a girl with Pulmonary Hypertension... Sharing the ups and downs of the disease and just about anything else!
She's not contagious...really - This blog is about little Alana who is suffering from an undiagnosed lung disease.
