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The British Lung Foundation - Supporting 8 million people across the UK affected by lung disease
British Paediatric Orphan Lung Diseases (BPOLD) - BPOLD aims to establish a registry of nine rare lung diseases in children in the UK.The registry will provide data on the prevalence and incidence of individual rare lung diseases and inform research projects which will increase our understanding of these diseases and ultimately improve treatment strategies for these children.
The Rare Lung Diseases Consortium (RLDC) - RLDC is a network of cooperating clinical centers and patient support organizations that are working with the National Institutes of Health (NIH) in a collaborative network whose novel structure is designed to accelerate clinical research and improve the delivery of medical care to individuals affected by rare lung diseases.
Orphanet - Orphanet is a database of information on rare diseases and orphan drugs for all publics. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases. Orphanet includes a Professional Encyclopaedia, which is expert-authored and peer-reviewed, a Patient Encyclopaedia and a Directory of expert Services.
The Children’s Interstitial Lung Disease (chILD) Foundation -The Mission of this non-for-profit organization is to provide support, education and hope to families affected with a paediatric interstitial lung disease and to advocate and raise funds for scientific research.
UK Transplant - Organ donation saves lives, UK Transplant have one focus - to save or improve the lives of thousands of people every year through organ transplantation.
Live Life Then Give Life - Live Life Then Give Life works tirelessly to save the lives of all those who need an organ transplant in the UK. Funds are used to raise awareness of organ donation and to fund projects that increase in the numbers of successful transplants that are carried out each year.
The Transplant Support Network - The TSN is a nationwide network of volunteer transplant patients and their carers, providing support, non-medical advice and information for all those coping with transplantation.
